Our ALS Navigation Programs

Assistance to Newly Diagnosed

Information and assistance for people recently diagnosed with ALS or recently referred to The ALS Association.

Family Support

Providing support to family members and caregivers through programs such as Care Connection, support groups, caregiver and survivor support, Quality of Life Grants and The Walk to Defeat ALS.

Research, Resources, Referrals, Education and Outreach

Linking families to appropriate resources to help them navigate the complex system of health, social, legal and financial services. Also, providing the most current resources, materials and speakers to families, healthcare professionals and the general public as well as working with all levels of government to draw awareness and resources.

Treatment Centers

Multidisciplinary care specifically for people with ALS.

Geographic Management and Urgent Needs

Consultation on area issues with a team of nurses and master’s- level social workers, as well as a variety of support groups. Also, helping families deal with urgent issues locally, including problems with Medicare, Medicaid, Social Security, rural resources, abuse, end-of life issues and more.

Equipment

Consultation on the use of equipment, home adaptations and computer-enhanced communication devices, as well as an equipment loan pool.