Our ALS Navigation Team

Information from our navigation team and trusted outside sources will customized to the needs of a person diagnosed with ALS and their caregivers. Services also include outreach to primary care physicians and staff to provide information about ALS practice parameters and symptom management best practices.

Our team of nurses and master’s-level social workers will work with you every step of the way. Additionally you will have access to an ALS Navigator in your area who can assist you with urgent needs and help to connect you to the appropriate specialist in our team.

The ALS Association selects, certifies and supports distinguished regional institutions recognized as the best in the field with regard to knowledge of and experience with ALS. We partner with medical facilities to provide multi-disciplinary clinical care in Kansas City and Omaha. The Chapter also partners with the University of Missouri Health Care to provide an ALS Treatment Center in Columbia, MO and at CoxHealth in Springfield, MO. Thanks to the Ice Bucket Challenge and other generous donors, we now have a TeleClinic in Wichita. For More information on accessing clinical care contact our team.

Team members provide support to family members and caregivers through a variety of programs and services. Services include support groups, Care Connections and the Walk to Defeat ALS. Other family support programs include grants to assist with transportation, respite and other financial needs. 

Equipment, home adaptations and computer enhanced communication devices can help alleviate some of the debilitating aspects of ALS such as mobility and communication. Our program helps to identify needs and avenues for acquiring necessary items.

Our team will help link your family to appropriate resources, help you negotiate the complex system of health, social, legal and financial services. Military veterans have additional benefits available. We have resources to assist you access them.

Our team is available to present if you are interested in raising ALS awareness to healthcare professionals, legislators, rural areas or general public.