Our ALS Navigation Programs
Assistance to Newly Diagnosed
Information and assistance for people recently diagnosed with ALS or recently referred to The ALS Association.
Multidisciplinary care specifically for people with ALS.
Research, Resources, Referrals, Education and Outreach
Linking families to appropriate resources to help them navigate the complex system of health, social, legal and financial services. Also, providing the most current resources, materials and speakers to families, healthcare professionals and the general public as well as working with all levels of government to draw awareness and resources.
Family Support
Providing support to family members and caregivers through programs such as Care Connection, support groups, caregiver and survivor support, the Community of Angels Fund, and The Walk to Defeat ALS.
Geographic Management
Consultation on area issues with a team of nurses and master’s- level social workers, as well as a variety of support groups. Also, helping families deal with urgent issues locally, including problems with Medicare, Medicaid, Social Security, rural resources, abuse, end-of life issues and more.
Equipment
Consultation on the use of equipment, home adaptations and computer-enhanced communication devices, as well as an equipment loan pool.