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Celebrating Four Legacy Honorees

Join The Chapter in celebrating the Legacy of these men, and the those they have inspired. The impact they have had in the fight against ALS cannot be overestimated. To celebrate their legacy we are asking you to make a donation in their memory to continue the work they started.

Keith Worthington

Keith was diagnosed with ALS in 1973. Finding extraordinarily little information or resources available he and his wife Sue formed the Keith Worthington ALS Society which would later become The Mid-America Chapter. Keith recruited a young baseball player named George Brett to the cause, and he has remained loyal and active in the fight for over 40 years.


Bruce Edwards

Bruce was Tom Watson’s caddy for more than 30 years. When he was diagnosed with ALS, he told Tom “We shot a quad” meaning it was bad. Tom committed to learning about and funding ALS research. Decades later he keeps his promise to do all he can to find a cure.

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Joe McGuff

Joe was diagnosed with ALS in 1999. As the editor of the Kansas City Star, and member of the writers’ wing of the baseball hall of fame, Joe was respected in Kansas City and throughout the baseball community. Many athletes and businesspeople in Kansas City remain committed to the cause because of Joe and his family. The Joe McGuff ALS Golf Classic is played in his memory.


Richie Ontiveros

Richie was a Kansas City, Kansas police officer until he was diagnosed with ALS. Richie’s family cared for him at home with the assistance of the Keith Worthington ALS Society. Richie’s nephew, Steven St. John has never forgotten the efforts of The Society and has stepped up to use his microphone to share information about ALS and the efforts of The Chapter.

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