Wondering how your donations on #GivingTuesday directly help someone with ALS? Below are several stories of individuals, who have received care, equipment, respite funds and more from The ALS Association Mid-America Chapter, free of charge.
You can help empower people with ALS and their families. Every donation you make on #GivingTuesday helps fund programs The ALS Association Mid-America Chapter provides to people living with ALS and their families.
John Koski is someone with 32 marathons under his belt. He has bicycled 20,000 miles across 36 countries and competed in 10 cross country skiing races. In March 2021, he was diagnosed with ALS, which has changed everything ... except his mentality. Even though The Springfield Walk to Defeat ALS went virtual, he got a power wheelchair from our equipment loan closet and set out on the path around the 10-acre campus of his retirement village, riding for 3 hours and 20 minutes.
Melda Hardesty was diagnosed with ALS on September 29, 2021. As the disease progressed rapidly, her biggest challenge became getting in and out of the house safely. Thanks to The Quality of Life Grant Program, Melda was able to have a ramp installed in her home. Making life just a little bit easier.
In December 2020, Jim O'Hare was diagnosed with ALS. Soon after his diagnosis, Jim connected with The ALS Association Mid-America Chapter and we paired him with an ALS Navigator. This licensed social worker assessed his needs and provided resources and equipment for Jim.
“I can't come home yet, because I got to go and check on so-and-so.”
For 41 years, Julie was married to Chuck and that was a phrase she used to hear him say MANY times. But two and half years ago, on May 2, 2019, Chuck was diagnosed with ALS. That’s when he began to ask others for help. Following his diagnosis, he began attending the ALS multi-disciplinary clinic at CoxHealth in Springfield, Missouri, where they fitted him with a wheelchair, track his progression and offer resources and information. Making his ALS journey just a little bit easier.
The ALS Association's advocacy work focuses on educating and mobilizing all members of Congress in a nonpartisan fashion, to achieve our mission.
Click the video to learn more about ALS advocacy. Ashley Smith, Director of Advocacy for The ALS Association, shares recent updates and a recap of this year's ALS advocacy.
Everything we do supports our mission of finding treatments and a cure for ALS, which is why it is so critical to fund outstanding ALS research.
Click the video to learn about The ALS Association's Research Program from Kuldip Dave, Vice President of Research at The ALS Association.