ALS Focus is a patient- and caregiver-led survey program that asks people with ALS and current and past caregivers about their needs and challenges. The goal is to learn as much as possible about individual experiences throughout the disease journey so that the whole ALS community can benefit.
All data collected is de-identified and shared free of charge with the entire ALS community.
People with ALS, current and past caregivers are eligible to participate, please sign up for ALS Focus here .
An Update on COVID-19, ALS and Chapter Events
The Chapter understands that many of you in our ALS community may have questions and concerns related to the spread of the coronavirus, known as COVID-19. We are closely monitoring national government health agency guidance and consulting with our local and state health agencies on dealing with the coronavirus.
Information about local programs, services and events is available here.
We have an FAQ that examines COVID-19 and ALS. You can read it here.
For the most recent information about the coronavirus (COVID-19), The ALS Association recommends that you reference the websites for the Centers for Disease Control (CDC), the World Health Organization (WHO), and state and local health authorities.
For specific information about symptoms you may be experiencing or questions about personal exposure as someone living with ALS or as a caregiver, please contact your physician directly.
Become an ALS Advocate
Help change the laws and policies that affect thousands of people with ALS and their families.
ALS advocates lead the fight to defeat ALS on the frontlines. You can lead us closer to a world without ALS by joining the dedicated network of ALS advocates nation-wide. As an ALS advocate, you can help change the laws & policies that affect thousands of people living with ALS and their families.
The Mid-America Chapter supports people living with ALS and their loved ones through services and education in Kansas, Nebraska and Western Missouri. We leave no stone unturned in search for the cure of this progressive neurodegenerative disease.
The ALS Association Mid-America Chapter Regional office
6405 Metcalf Ave., Ste. 205
Overland Park, KS 66202