The Chapter Joins the ALS Community Mourning the Loss of Pat Quinn
We are deeply saddened to share that Pat Quinn, co-founder of the ALS Ice Bucket Challenge passed away at the age of 37.
Pat was diagnosed with ALS in 2013 and went on to help popularize the greatest social media campaign in history. The Ice Bucket challenge dramatically accelerated the fight against ALS, leading to new research discoveries, expansion of care for people with ALS, and greater investment by the government in ALS research.
Pat continued to raise awareness and funds for the fight against ALS and our thoughts are with the Quinn family and all of his friends and supporters. Pat was loved by many of us within the ALS community and around the world. He will be missed, but he will continue to inspire us until we have a world without ALS.
To commemorate the 37th annual Joe McGuff ALS Classic the Mid-America Chapter is celebrating four men whose courage in the face of ALS has inspired some of The Chapter’s most visible and vocal advocates: George Brett, Tom Watson and Steven St. John. Read about each of our honorees.
An Update on COVID-19, ALS and Chapter Events
The Chapter understands that many of you in our ALS community may have questions and concerns related to the spread of the coronavirus, known as COVID-19. We are closely monitoring national government health agency guidance and consulting with our local and state health agencies on dealing with the coronavirus.
Information about local programs, services and events is available here.
We have an FAQ that examines COVID-19 and ALS. You can read it here.
For the most recent information about the coronavirus (COVID-19), The ALS Association recommends that you reference the websites for the Centers for Disease Control (CDC), the World Health Organization (WHO), and state and local health authorities.
For specific information about symptoms you may be experiencing or questions about personal exposure as someone living with ALS or as a caregiver, please contact your physician directly.
Thank you for your patience as we manage this rapidly shifting situation.
Become an Advocate
Help change the laws and policies that affect thousands of people with ALS and their families.
ALS advocates lead the fight to defeat ALS on the frontlines. You can lead us closer to a world without ALS by joining the dedicated network of ALS advocates nation-wide. As an ALS advocate, you can help change the laws & policies that affect thousands of people living with ALS and their families.
The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes.
The Mid-America Chapter supports people living with ALS and their loved ones through services and education in Kansas, Nebraska and Western Missouri. We leave no stone unturned in search for the cure of this progressive neurodegenerative disease.
The ALS Association Mid-America Chapter Regional office
6950 Squibb Rd., Ste. 210
Mission, KS 66202