2021 Walks to Defeat ALS Now Open
2020 changed the way we did many things, and The Walk to Defeat ALS was no different. Hundreds of families hosted their own walks across our Chapter Service area.
The walk websites are open and accepting registrations. Get your team signed up, and started fundraising.
Joe McGuff ALS Golf Classic
The 38th Annual Joe McGuff ALS Golf Classic is being held on May 10th at the Nicklaus Course at LionsGate. Again in 2021 we are excited to have both George Brett and Tom Watson join us, as well as dozens of other Kansas City celebrities.
When the tournament began it was known as the George Brett Celebrity Golf Classic. This premier tournament was renamed in honor of the great Kansas City sports writer Joe McGuff in 2003, and has continued the tradition of an exciting event designed to entertain its guests while raising much-needed funds for research and care services.
Not able to attend the event? You can still be a part of the exciting auction featuring sports items, golf apparel and other household items.
The auction opens at noon on Friday, may 7th, and closes on Tuesday, May 11th. Click the button below to see all the items up for bid.
ALS Focus Survey
ALS Focus is a patient- and caregiver-led survey program that asks people with ALS and current and past caregivers about their needs and burdens. The goal is to learn as much as possible about individual experiences throughout the disease journey so that the whole ALS community can benefit.
ALS is a very difficult disease, and as caregivers you need as much support as you can get. It’s so important that your opinions and experiences as caregivers be considered and used to inform policy change, program delivery, research, and even drug development.
If you are a caregiver, please sign up for ALS Focus here and take our 10-minute survey on caregiver needs. And if you are a person living with ALS, please send this to the caregiver in your life. We want to learn more about the issues facing caregivers, and how we can better support our ALS community!
An Update on COVID-19, ALS and Chapter Events
The Chapter understands that many of you in our ALS community may have questions and concerns related to the spread of the coronavirus, known as COVID-19. We are closely monitoring national government health agency guidance and consulting with our local and state health agencies on dealing with the coronavirus.
Information about local programs, services and events is available here.
We have an FAQ that examines COVID-19 and ALS. You can read it here.
For the most recent information about the coronavirus (COVID-19), The ALS Association recommends that you reference the websites for the Centers for Disease Control (CDC), the World Health Organization (WHO), and state and local health authorities.
For specific information about symptoms you may be experiencing or questions about personal exposure as someone living with ALS or as a caregiver, please contact your physician directly.
Thank you for your patience as we manage this rapidly shifting situation.
Become an Advocate
Help change the laws and policies that affect thousands of people with ALS and their families.
ALS advocates lead the fight to defeat ALS on the frontlines. You can lead us closer to a world without ALS by joining the dedicated network of ALS advocates nation-wide. As an ALS advocate, you can help change the laws & policies that affect thousands of people living with ALS and their families.
The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes.
The Mid-America Chapter supports people living with ALS and their loved ones through services and education in Kansas, Nebraska and Western Missouri. We leave no stone unturned in search for the cure of this progressive neurodegenerative disease.
The ALS Association Mid-America Chapter Regional office
6405 Metcalf Ave., Ste. 205
Overland Park, KS 66202