2021 Walks to Defeat ALS Now Open
2020 changed the way we did many things, and The Walk to Defeat ALS was no different. Hundreds of families hosted their own walks across our Chapter Service area.
The walk websites are open and accepting registrations. Get your team signed up, and started fundraising.
Our Goal: By 2030, ALS Will Be a Livable Disease
We believe that with the right focus, and enough resources, this is achievable. To get there, we’re going to need to find new treatments and cures, optimize current care and treatments, and prevent or delay the harms of ALS.
ALS Focus Survey
ALS Focus is a patient- and caregiver-led survey program that asks people with ALS and current and past caregivers about their needs and burdens. The goal is to learn as much as possible about individual experiences throughout the disease journey so that the whole ALS community can benefit.
ALS is a very difficult disease, and as caregivers you need as much support as you can get. It’s so important that your opinions and experiences as caregivers be considered and used to inform policy change, program delivery, research, and even drug development.
If you are a caregiver, please sign up for ALS Focus here and take our 10-minute survey on caregiver needs. And if you are a person living with ALS, please send this to the caregiver in your life. We want to learn more about the issues facing caregivers, and how we can better support our ALS community!
The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes.
The ALS Association Mid-America Chapter Regional office
6405 Metcalf Ave., Ste. 205
Overland Park, KS 66202
An Update on COVID-19, ALS and Chapter Events
The Chapter understands that many of you in our ALS community may have questions and concerns related to the spread of the coronavirus, known as COVID-19. We are closely monitoring national government health agency guidance and consulting with our local and state health agencies on dealing with the coronavirus.
Information about local programs, services and events is available here.
We have an FAQ that examines COVID-19 and ALS. You can read it here.
For the most recent information about the coronavirus (COVID-19), The ALS Association recommends that you reference the websites for the Centers for Disease Control (CDC), the World Health Organization (WHO), and state and local health authorities.
For specific information about symptoms you may be experiencing or questions about personal exposure as someone living with ALS or as a caregiver, please contact your physician directly.
Thank you for your patience as we manage this rapidly shifting situation.
Become an Advocate
Help change the laws and policies that affect thousands of people with ALS and their families.
ALS advocates lead the fight to defeat ALS on the frontlines. You can lead us closer to a world without ALS by joining the dedicated network of ALS advocates nation-wide. As an ALS advocate, you can help change the laws & policies that affect thousands of people living with ALS and their families.
The Mid-America Chapter supports people living with ALS and their loved ones through services and education in Kansas, Nebraska and Western Missouri. We leave no stone unturned in search for the cure of this progressive neurodegenerative disease.