An Update on COVID 19 and Chapter Events
The Chapter understands that many of you in our ALS community may have questions and concerns related to the spread of the coronavirus, known as COVID-19. We are closely monitoring national government health agency guidance and consulting with our local and state health agencies on dealing with the coronavirus.
Information about local programs, services and events is available here.
For the most recent information about the coronavirus (COVID-19), The ALS Association recommends that you reference the websites for the Centers for Disease Control (CDC), the World Health Organization (WHO), and state and local health authorities.
For specific information about symptoms you may be experiencing or questions about personal exposure as someone living with ALS or as a caregiver, please contact your physician directly.
Thank you for your patience as we manage this rapidly shifting situation.
2020 A Night of Hope A Huge Success
Thank you to everyone who attended the 32nd Annual A Night of Hope! The evening was filled with fun, food and hope.
The 2020 George Brett Award for Commitment was Martie Cordaro. You can learn more about Martie in his video.
Pictures from the event are up and available for viewing and downloading. Special thanks to all of our volunteer photographers who donated their time.
At no cost to you, our Case Managers are here to help address any roadblocks to access and affordability.
Case management services provide hands-on navigation of the reimbursement system, ensuring access to prescribed and emerging therapies and treatment and the practical financial support needs and often addressing the holistic needs of the patient, recognizing that everyday barriers often impact access and compliance. Education, research, and representation across a wide spectrum of services are provided for uninsured, underinsured, and insured patients.
Become an Advocate
Help change the laws and policies that affect thousands of people with ALS and their families.
ALS advocates lead the fight to defeat ALS on the frontlines. You can lead us closer to a world without ALS by joining the dedicated network of ALS advocates nation-wide. As an ALS advocate, you can help change the laws & policies that affect thousands of people living with ALS and their families.
The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes.
The ALS Association Mid-America Chapter Regional office
6950 Squibb Rd., Ste. 210
Mission, KS 66202